|
Other Battens Disease Web Sites
Below are a list of Web Sites. Phil Milto and his efforts with NATHANS BATTLE is the reason this site exists.
If you have got this far you are probably thinking of how you can help. This is a plea from the hearts of all the families who go through the years of suffering and watching their children die at the hands of this wretched disease. If you can then be a part of what may be a major break through in the treatment of brain disorders and eventually the efforts of us all will eliminate the need for social support, then my wife, myself and my children will be looking forward to a brighter future as will thousands of families who currently are fighting to get through each day.
On holiday in Devon this August we went to Butlins at Minehead for a day out and a swim.
Dave Benson-Philips was doing his show in the evening.
He kindly took time out after the show to meet the girls as they adore him from "The Fun Song Factory"
Lycos
One of the most visited hubs on the Internet reaching one out of every two web users.
Yahoo!
With over half a million sites divided into more than 25,000 categories, Yahoo! is both browseable and searchable.
The Great Pretender
Steve Littlewood travels the country as Freddie Mercury. He has performed for us and does a collection at all his gigs for the trust. Why not visit and see if he is playing near you. He is fantastic!!!!!!
BATTENS DISEASE RELATED SITES
Nathans Battle.
Where it all started 4 years ago. Without this website we would not be looking at a future for our kids.
Johns story, a family recently having to come to terms with battens
Help is needed by this family to come to terms with Battens
Battens support and research trust
U.K. based but helping internationally.
Battens disease family association
helping with support and fundraising to beat this disease
The Natey Foundation.
A personal site with information.
Jordan Jay Trust
Jordan and now his sister Jasmine both have battens and have been helping to fundraise on behalf of nathans Battle.
All the above sites have links to other sites. The aim of us all is to spread the word on Battens and come up with the goods to help with support and also fund research. They contain a wealth of expert knowledge and information on Battens disease and what progress is being made in the scientific world.
Dr. Jonathan Cooper being prominent at Kings college in England.
The aim of This web site is to raise funds for one particular area in the fight against Battens. This was to get to a clinical trial . The first and only one of its kind that I am aware of. We are now only weeks away from achieving our goal. (as of 1st August 2004) The campaign goes forward, we can make a difference...........we are making a difference.
|
